The Michigan Department of Health and Human Services (MDHHS) recently introduced a new administrative rule requiring the reporting of Amyotrophic Lateral Sclerosis cases across the state. The rule took effect May 15, making Michigan the fifth state in the nation to implement such a mandate.
Commonly known as Lou Gehrig’s disease, ALS is a progressive neurological disorder that affects motor neurons in the brain and spinal cord. As the disease advances, it gradually impairs the ability to walk, speak, swallow and breathe. Thousands of new cases are diagnosed each year in the United States.
Under the rule, healthcare providers and organizations are required to report confirmed ALS cases to MDHHS. The data will be compiled into a statewide registry to help monitor trends and support broader public health planning.
MDHHS will use the information to study how ALS is occurring across Michigan, examine any regional patterns and track changes over time. These efforts are expected to guide planning, improve service coordination and contribute to research at the state and national level.
Members with questions may contact Lenise Freeman at the MHA